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Table 3 Caregiver and caregiver-reported MS characteristics

From: A forgotten aspect of the NICE reference case: an observational study of the health related quality of life impact on caregivers of people with multiple sclerosis

Characteristic Distribution
Length of time as caregiver (years) Mean (SD) 9.57 (8.47)
Length of time individual has had MS (years) Mean (SD) 14.93 (12.83)
Type of MS Relapsing Remitting MS (RRMS) N (%) 50 (25.0%)
Secondary Progressive MS (SPMS) 87 (43.5%)
Primary Progressive MS (PPMS) 63 (31.5%)
PDDS Level* 0 N (%) 12 (6.0%)
1 16 (8.0%)
2 15 (7.5%)
3 9 (4.5%)
4 20 (10.0%)
5 26 (13.0%)
6 27 (13.5%)
7 62 (31.0%)
8 13 (6.5%)
Relationship between caregiver and individual with MS Partner/Spouse N (%) 153 (76.5%)
Parent 13 (6.5%)
Child 4 (2.0%)
Family Other 19 (9.5%)
Friend 11 (5.5%)
Live with the person you provide care for? Yes N (%) 168 (84.0%)
Number of hours a day providing care 1 - 4 N (%) 55 (27.5%)
5 - 9 46 (23.0%)
10 - 24 99 (49.5%)
Help with activities of daily living Getting in/out of bed N (%) 116 (58.0%)
Dressing 116 (58.0%)
Washing 102 (51.0%)
Cooking 157 (78.5%)
Eating 59 (29.5%)
Getting around inside the home 104 (52.0%)
Getting around outside the home 156 (78.0%)
Help with caregiving? None N 93
Friends/Relatives 85
  External formal care giver   51
  1. N = Sample Size; SD = Standard Deviation; * See Table 1 for description of PDDS levels.