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Table 4 Problems with staff-patient interactions, information provision, involvement in decisions and self-care support by age and condition for items included in OxPIE

From: People with limiting long-term conditions report poorer experiences and more problems with hospital care

Questionnaire items Age group No-LLTC % 95% CI S-LLTC % 95% CI M-LLTC % 95% CI
Doctors’ answers to important 16-29 41.0 39.0-43.0 46.1 42.6-49.7 50.4 44.0-56.9
questions not always clear 30-44 34.9 33.4-36.4 39.7 37.3-42.1 50.5 46.2-54.7
  45-59 25.4 24.4-26.4 33.7 32.2-35.2 39.8 37.4-42.2
  60-74 18.3 17.6-18.9 29.0 27.9-30.1 35.9 34.2-37.6
  75-89 20.1 19.2-20.9 34.2 32.9-35.4 42.1 40.5-43.7
  ≥ 90 30.4 26.3-34.4 34.9 30.1-39.6 51.4 47.3-55.6
  Total 23.8 23.3-24.2 33.3 32.6-33.9 41.2 40.2-42.2
Nurses’ answers to important 16-29 40.1 38.1-42.0 48.6 45.0-52.2 49.1 42.7-55.6
questions not always clear 30-44 35.1 33.6-36.5 39.9 37.5-42.3 45.7 41.5-49.9
  45-59 26.7 25.6-27.7 35.1 33.6-36.6 38.3 35.9-40.7
  60-74 20.7 20.0-21.4 31.2 30.1-32.4 37.2 35.5-40.7
  75-89 20.9 20.1-21.7 35.7 34.4-37.0 41.7 40.1-43.2
  ≥ 90 28.7 24.8-32.7 42.7 37.8-47.6 48.3 44.2-52.4
  Total 25.0 24.5-25.4 35.0 34.4-35.7 40.8 39.8-41.7
Not easy to find someone to 16-29 45.4 43.3-47.4 48.3 44.8-51.9 59.4 53.0-65.8
talk about worries and fears 30-44 39.9 38.4-41.4 49.0 46.6-51.5 57.5 53.4-61.7
  45-59 32.7 31.6-33.8 41.9 40.4-43.5 47.9 45.4-50.4
  60-74 25.6 24.8-26.4 38.0 36.8-39.2 43.3 41.5-45.1
  75-89 26.8 25.9-27.7 42.1 40.8-43.5 48.0 46.4-49.6
  ≥ 90 35.2 31.0-39.3 47.8 42.8-52.8 57.4 53.3-61.5
  Total 30.4 30.0-30.9 41.6 40.9-42.3 48.1 47.1-49.1
Hospital staff sometimes gave 16-29 48.0 46.0-50.1 60.3 56.8-63.8 69.7 63.8-75.7
conflicting information 30-44 40.3 38.8-41.8 50.4 48.0-52.9 59.2 55.1-63.3
  45-59 32.6 31.5-33.6 43.0 41.4-44.5 49.9 47.5-52.4
  60-74 24.5 23.7-25.2 36.4 35.2-37.5 43.1 41.3-44.9
  75-89 20.5 19.6-21.3 34.8 33.5-36.1 40.1 38.5-41.7
  ≥ 90 26.1 22.2-30.0 36.2 31.4-41.0 44.0 39.9-48.2
  Total 28.5 28.0-28.9 39.5 38.8-40.2 44.7 43.7-45.7
Did not feel got enough 16-29 39.8 37.8-41.7 49.0 45.4-52.6 61.1 54.8-67.5
emotional support from staff 30-44 36.3 34.8-37.8 46.3 43.8-48.7 58.1 53.9-62.2
  45-59 26.7 25.7-27.8 38.5 37.0-40.0 44.8 42.4-47.3
  60-74 17.8 17.2-18.5 30.8 29.6-31.9 36.3 34.6-38.1
  75-89 17.0 16.2-17.8 31.9 30.6-33.2 37.5 35.9-39.1
  ≥ 90 25.4 21.6-29.2 39.1 34.2-44.0 50.1 45.9-54.2
  Total 23.1 22.7-23.5 35.1 34.4-35.7 41.0 40.0-42.0
Not always treated with respect 16-29 34.1 29.5-33.3 39.7 26.2-43.2 47.4 40.9-53.9
and dignity 30-44 26.7 25.3-28.1 31.4 29.2-33.7 42.8 38.6-46.9
  45-59 19.0 18.1-19.9 25.5 24.2-26.9 32.6 30.3-34.9
  60-74 12.4 11.8-12.9 20.5 19.5-21.5 25.8 24.3-27.4
  75-89 10.9 10.3-11.6 21.2 20.1-22.3 26.9 25.4-28.3
  ≥ 90 18.4 15.0-21.7 27.8 23.4-32.3 35.2 31.3-39.1
  Total 16.3 15.9-16.7 23.7 23.1-24.3 29.5 28.6-30.4
Not fully involved in decisions 16-29 51.1 49.1-53.2 57.6 54.1-61.2 66.7 60.5-72.8
About care and treatment 30-44 48.7 47.1-50.2 54.9 52.5-57.4 62.8 58.8-66.9
  45-59 43.3 42.1-44.4 49.2 47.6-50.7 54.3 51.9-56.8
  60-74 36.9 36.1-37.8 46.9 45.7-48.1 52.4 50.6-54.2
  75-89 43.4 42.4-44.5 55.1 53.7-56.4 61.3 59.8-62.9
  ≥ 90 55.2 50.9-59.6 63.3 58.5-68.1 70.3 66.5-74.1
  Total 42.4 41.9-42.9 51.3 50.6-52.0 58.4 57.4-59.3
Not fully involved in decisions 16-29 48.0 45.9-50.0 49.6 46.0-53.2 52.4 45.9-58.8
about discharge 30-44 43.6 42.0-45.1 47.8 45.3-50.2 52.9 48.7-57.1
  45-59 38.6 37.5-39.7 43.1 41.6-44.6 46.7 44.3-49.2
  60-74 35.2 32.5-34.1 46.2 39.4-41.8 50.9 43.3-46.9
  75-89 41.4 34.2-36.2 47.1 44.8-47.5 55.7 49.2-52.5
  ≥ 90 38.4 37.0-45.7 52.4 42.1-52.1 55.4 51.6-59.8
  Total 37.1 36.6-37.6 43.9 43.2-44.6 49.0 48.0-50.0
Not told who to contact if 16-29 33.1 31.2-35.0 32.5 29.2-35.9 40.6 34.2-47.0
Worried about condition or 30-44 28.1 26.7-29.5 31.4 29.1-33.7 36.8 32.7-40.9
treatment after discharge 45-59 23.5 22.5-24.5 25.7 24.3-27.0 30.6 28.3-32.8
  60-74 21.4 20.7-22.1 26.4 25.3-27.4 29.2 27.6-30.9
  75-89 31.8 30.8-32.8 36.8 35.5-38.1 41.6 40.0-43.2
  ≥ 90 55.1 50.6-59.5 55.9 51.0-61.0 58.8 54.7-63.0
  Total 26.5 26.1-27.0 30.5 29.9-31.2 37.0 36.0-37.9
Not told about danger signals 16-29 52.0 50.0-54.0 52.1 48.5-55.7 57.8 51.3-64.2
to watch out for at home 30-44 47.8 46.2-49.3 49.5 47.0-51.9 58.9 54.7-63.0
  45-59 41.2 40.1-42.4 44.2 42.6-45.8 48.3 45.8-50.8
  60-74 36.7 35.9-37.6 44.4 43.2-45.6 48.2 46.4-50.0
  75-89 39.2 38.2-40.2 50.4 49.0-51.8 53.7 52.0-55.3
  ≥ 90 44.7 40.2-49.2 51.2 46.1-56.4 58.5 54.3-62.6
  Total 40.7 40.2-41.2 47.0 46.3-47.7 51.8 50.8-52.8
Family/friends not given 16-29 46.7 44.7-48.7 48.1 44.5-51.7 47.8 41.2-54.3
sufficient information to help 30-44 39.1 37.6-40.6 46.0 43.5-48.5 52.3 48.1-56.5
recovery 45-59 34.6 33.5-35.7 40.4 38.8-41.9 42.9 40.1-45.4
  60-74 29.7 28.9-30.5 38.4 37.2-39.5 41.2 39.4-43.0
  75-89 28.6 27.6-29.5 40.5 39.2-41.8 44.4 42.7-46.0
  ≥ 90 34.0 29.8-38.2 43.0 38.0-48.1 49.2 45.0-53.4
  Total 32.7 32.2-33.2 40.6 39.9-41.3 44.2 43.2-45.2