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Table 2 Selected items for the final questionnaire, based on frequency of selection by the participants (n = 86)

From: Measuring satisfaction with health care in young persons with inflammatory bowel disease -an instrument development and validation study

Item Origin Category Content Frequency of selection in %   Reason for selection
1 P A Appointments compatible with school/working schedule 33.7  
2 P A Same day emergency appointment 72.1   Top 2
3 P CO No difference based on insurance status 65.1   Top 3
4 P CO Easy access to follow-up prescriptions 45.3  
5 P CO No unnecessary investigations 41.9  
6 P CO Liquid laxative with acceptable taste 46.5  
7 P CO Share experiences with other patients 43.0/51.2  
8 P CO Treatment in specialized hospitals 51.2  
9 P AC Clean and hygienic office 73.3   Top 1
10 P AC Sufficient number of clean restrooms 43.0  
11 P CC Treatment always by the same doctor 48.8  
12 D CC Cooperation of doctor with IBD clinics 44.2  
13 D CC Smooth communication between GP and IBD doctor 41.9  
14 P CC Involvement of psychologist/psychotherapist 65.1   Expert opinion
15 P CC Involvement of other specialized doctors 76.7  
16 P C Individual treatment 53.5  
17 P C Understanding of fears and worries 54.7   Female
18 P C Discusses investigations/results 50.0  
19 P C Taking personal situation into account 47.7   Age 18-20
20 P C Devoting enough time 39.5   Age 15-17
21 P C Showing that it is important that the patient gets better 44.2  
22 P C Bearing personal life planning in mind 38.4/39.5/32.6  
23 P C Friendly and polite nurses 57.0  
24 P C Understanding and respectful nurses 55.8/53.5  
25 P I Explanations in easy-to-understand language 25.6   Age 15-17
26 P I Information about investigations/results 43.0/58.1  
27 P I Listening/responding to problems 46.5  
28 P CM Experience in IBD treatment 52.3  
29 P CM up to date knowledge about IBD 45.3  
30 P CM Alternatives to steroid treatment 40.7   Age 18-20
31 P AU Coordination of therapeutic decisions 48.8  
32 L AU Facilitates 2nd opinion 46.5  
  1. Explanation: If two or three items were collapsed into one, the frequencies of all original items are shown (see Item 7, 22, 24, and 26). If an item was selected because of top preference in a subgroup (sex, age), this is documented in the last column. P = Qualitative Patient Survey, D = Qualitative Doctor Survey, L = Literature. A = Accessibility, CO = Costs and Organization, AC = Accommodation, CC = Continuity of Care, C = Courtesy, I = Information, CM = Competence, AU = Autonomy.