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Table 2 Summary of disclosure behaviours

From: Appropriate disclosure of a diagnosis of dementia: identifying the key behaviours of 'best practice'

  Category (number of behaviours) Sub-categories (number of behaviours)
1 Preparing for disclosure (31) • Plan disclosure meeting (14)
   • Arrange post-diagnosis support (2)
   • Establish rapport (3)
   • Prepare the patient (4)
   • Elicit preferences for disclosure (8)
2 Integrating family members (10) • Identify & involve appropriate family members (4)
   • Manage differing information needs of patient & family (2)
   • Avoid collusion with family members (4)
3 Exploring the patient's perspective (13) • Explore patient ideas (11)
   • Elicit patient expectations (2)
4 Disclosing the diagnosis (33) • Tailor information to patient preferences & ideas (7)
   • Check understanding (7)
   • Explore the meaning(s) of the diagnosis (12)
   • Discuss prognosis (7)
5 Responding to patient's reactions (24) • Explore the patient's emotional response (11)
   • Elicit & address patient questions & concerns (13)
6 Focusing on quality of life & well-being (17) • Foster hope (9)
   • Explore coping strategies (8)
7 Planning for the future (41) • Clarify follow up arrangements (8)
   • Discuss support services available (7)
   • Negotiate management plan (19)
   • Discuss prevention & health promotion (7)
8 Communicating effectively (51) • Develop rapport (5)
   • Use appropriate verbal & non-verbal communication (20)
   • Use active listening skills (5)
   • Involve the patient (8)
   • Structure & signpost the consultation (7)
   • Consider issues of anti-discriminatory practice (6)