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Table 2 Measurement instruments

From: Access to timely formal dementia care in Europe: protocol of the Actifcare (ACcess to Timely Formal Care) study

Measurement instruments   
Variable Measure Assessed by
People with dementia
 Socio-demographics Datasheeta PwD
 Cognition MMSE PwD
 Service use Checklist PwD/CG
 Personal and social resources RUD CG
 Health-related quality of life EQ-5D-5L PwD
 Quality of life of PwD DEMQOL-U PwD
DEMQOL-U-Proxy CG
QOL-AD PwD, CG
EQ-5D-5L CG
 Quality of relationship PAI PwD
 Capability ICECAP-O PwD
 (un)met needs CANE PwD, CG, In
 Neuropsychiatric symptoms NPI-Q CG
 Severity of dementia CDR In
 Comorbidity Charlson Index In
 Activities of daily life IADL CG
PSMS CG
Informal carers
 Social isolation LSNS-6 CG
 Quality of relationship PAI CG
 Quality of life CarerQol-7D CG
 Health related quality of life EQ-5D-5L CG
 Anxiety and depression HADS CG
 Perseverance time Single question CG
 Stress RSS CG
 Capability ICECAP-O CG
 Control Locus of controla CG
 Sense of coherence SOC-13 CG
 Personal and social resources RUD CG
  1. Pwd people with dementia, CG informal carers, In interviewer. Measures which are only assessed at baseline are marked with an a