- Research article
- Open Access
- Open Peer Review
Sustainability in health care by allocating resources effectively (SHARE) 4: exploring opportunities and methods for consumer engagement in resource allocation in a local healthcare setting
BMC Health Services Researchvolume 17, Article number: 329 (2017)
This is the fourth in a series of papers reporting a program of Sustainability in Health care by Allocating Resources Effectively (SHARE) in a local healthcare setting. Healthcare decision-makers have sought to improve the effectiveness and efficiency of services through removal or restriction of practices that are unsafe or of little benefit, often referred to as ‘disinvestment’. A systematic, integrated, evidence-based program for disinvestment was being established within a large Australian health service network. Consumer engagement was acknowledged as integral to this process. This paper reports the process of developing a model to integrate consumer views and preferences into an organisation-wide approach to resource allocation.
A literature search was conducted and interviews and workshops were undertaken with health service consumers and staff. Findings were drafted into a model for consumer engagement in resource allocation which was workshopped and refined.
Although consumer engagement is increasingly becoming a requirement of publicly-funded health services and documented in standards and policies, participation in organisational decision-making is not widespread. Several consistent messages for consumer engagement in this context emerged from the literature and consumer responses. Opportunities, settings and activities for consumer engagement through communication, consultation and participation were identified within the resource allocation process. Sources of information regarding consumer values and perspectives in publications and locally-collected data, and methods to use them in health service decision-making, were identified. A model bringing these elements together was developed.
The proposed model presents potential opportunities and activities for consumer engagement in the context of resource allocation.
This is the fourth in a series of papers exploring a program of Sustainability in Health care by Allocating Resources Effectively (SHARE). The SHARE Program is an investigation of concepts, opportunities, methods and implications for evidence-based investment and disinvestment in health technologies and clinical practices in a local healthcare setting. The papers in this series are targeted at clinicians, managers, policy makers, health service researchers and implementation scientists working in this context. This paper reports the process of developing a model to integrate consumer views and preferences into an organisation-wide approach to resource allocation.
Removal or restriction of health technologies and clinical practices (TCPs) that are unsafe or of little benefit, often referred to as ‘disinvestment’, has the dual advantage of improving patient outcomes and enabling more effective use of available resources.
Leaders at Monash Health (previously Southern Health), a large health service network in Melbourne, Australia, sought to explore possibilities for disinvestment within an organisation-wide, systematic, integrated, evidence-based approach to allocation of resources. The ‘Sustainability in Health care by Allocating Resources Effectively’ (SHARE) Program was undertaken by the Centre for Clinical Effectiveness (CCE), an in-house resource to facilitate Evidence Based Practice. An overview of the SHARE Program, a guide to the SHARE publications and further details about Monash Health and CCE are provided in the first paper in this series .
Although the disinvestment literature has broadened considerably over the past two decades, there is little information to guide regional health authorities or local facilities in how they might take a systematic organisation-wide approach to disinvestment [2–11]. In the absence of guidance from the literature, a two-phased process was proposed to identify and then evaluate potential opportunities for disinvestment at Monash Health (Fig. 1). The aim of Phase One was to understand concepts and practices related to disinvestment and the implications for a local health service and, based on this information, to identify potential settings and methods for decision-making. The aim of Phase Two was to implement and evaluate the proposed methods to determine which were sustainable, effective and appropriate at Monash Health. The findings are reported in this thematic series [1, 12–21].
One of the aims of the SHARE Program was to explore ways to identify, capture and incorporate consumer perspectives into resource allocation decisions. The importance of public participation at all levels of the health system is widely recognised and has been described as a right and responsibility of healthcare consumers [22–24]. The primary goal of public involvement in health policy and service delivery is to ensure that decisions reflect the needs, concerns, values, culture, ideas and attitudes of consumers for whom the system exists and citizens who provide the resources for the system [23, 25–27]. Community and consumer participation is increasingly a requirement of publicly-funded health services. In Australia this is reflected in national standards and state policies [24, 28].
Monash Health was committed to consumer involvement in decision-making for establishment and delivery of the program. However, unlike decision-making contexts which are linked to a particular condition, service, population or other specified group, the SHARE Program was an organisation-wide approach that affected all patients across a multi-campus health service. This presented a challenge to the organisation in identifying and engaging consumer representatives to participate in these generic systems and processes and capturing consumer views and preferences to inform the activities.
Another SHARE project identified that, while decision-making is a key component of resource allocation, there are seven additional components required for achievement of this task . The eight components are Governance, Administration, Stakeholder engagement, Resources, Decision-making, Implementation, Evaluation and, in some situations, Reinvestment. A framework illustrating the relationships between components demonstrates that stakeholder engagement should be integrated within the structure and practice of all the other components (Fig. 2, Table 1) . Consumers are clearly stakeholders in allocation of health service resources and potentially have contributions to make in each of the eight components.
Although there is extensive literature on the effects of patient involvement in decisions about their own care [29–31], there is little evidence about the impact of public participation in decisions for healthcare policy and service delivery or the effectiveness of different types of engagement [25, 32–34]. There are numerous guides to public involvement in health service decision-making which provide information about potential engagement strategies, including a framework for patient involvement in decisions about use of health technologies at the local level , but there is no guidance on methods or frameworks for involving consumers in an organisation-wide approach for making, implementing and evaluating the whole range of resource allocation decisions . The methods of public involvement in health policy decisions through Citizen Councils have been described at national  and state/provincial  levels and their characteristics summarised . However Citizen Councils are independent from, and operate in parallel to, the institutional decision-making processes, which is in contrast to the Monash Health aim of integration within decision-making processes. There are many examples of participation of consumers alongside other stakeholders in project settings, in randomised controlled trials  and even in the context of disinvestment [9, 38–41], but these are limited to decision-making on a specified topic and do not address implementation or evaluation of the decision or the governance, administration and resources that underpin the processes. A systematic review on this topic  failed to find any frameworks or information for involving consumers in disinvestment decisions and these and other authors note an urgent need to develop methods to capture and utilise consumer perspectives in the context of resource allocation [10, 37, 42–44].
The aims of this project were to document current practice and identify additional opportunities and methods to integrate consumer views and preferences into decision-making for resource allocation at Monash Health.
The aim of this paper is to incorporate the findings of this investigation into a model for consumer engagement and use of consumer evidence within an integrated, systematic, organisation-wide approach to resource allocation.
How can consumer and community values and preferences be systematically integrated into organisation-wide decision-making for resource allocation?
Model for evidence-based change
The SHARE Program was undertaken using the SEAchange model for Sustainable, Effective and Appropriate change in health services . The model involves four steps: identifying the need for change, developing a proposal to meet the need, implementing the proposal and evaluating the extent and impact of the change. Each step is underpinned by the principles of evidence-based practice to ensure that the best available evidence from research and local data, the experience and expertise of health service staff and the values and perspectives of consumers are taken into account. Steps 1 and 2 of the model map to Phase One of the SHARE Program and Steps 3 and 4 correspond to Phase Two. The research question for this paper is highlighted in Fig. 1.
A two-step systematic review protocol was developed (Additional file 1). The first step was to identify existing synthesised evidence and appraise it for quality and applicability; if no suitable publications were identified then a search of the primary research literature would follow. Relevant high-quality synthesised evidence in the form of guidance documents for consumer engagement were identified in the first step hence no further searches were undertaken. A second review limited to PubMed, The Cochrane Library and the Google internet search engine was conducted to ascertain more recent synthesised evidence prior to developing the model for this paper.
Interviews and workshop
SHARE Consumer Working Group: three consumer representatives with experience in organisation-wide decision-making related to resource allocation as members of committees overseeing introduction of new TCPs and development of policies and procedures, and SHARE project team members
Monash Health Quality Manager and Consumer Engagement Manager: responsible for consumer-related activities
Monash Health Community Advisory Committee: a legislated advisory body to the health service Board providing consumer, carer and community perspectives
Monash Health staff who made organisation-wide decisions regarding resource allocation for TCPs
Monash Health project staff with experience in disinvestment-related activities
Data collection and analysis
Structured and semi-structured interviews and a structured workshop were undertaken. Details are provided in Additional file 1. A draft record of interview was sent to interviewees for clarification, comment and/or amendment as required. Responses were collated and analysed thematically by either content analysis  to identify emergent themes, or framework analysis  when categories had been specified a priori. Findings were presented in detailed reports used for project decision-making and planning. These reports have been synthesised to address the research question for this paper.
Development of the model
Concepts were identified from the literature, interviews and workshop, and three conceptual frameworks developed in other SHARE projects (Figs. 2, 3 and 4) [12, 13, 15]. Examples of activities within the key concepts were drawn from the literature and consumer feedback.
Relationships were developed by aligning the concepts from the literature, interviews and workshop with the components of the resource allocation process (Fig. 2).
Definitions were derived from the literature where possible. Two definitions were developed for the purposes of this model.
Drafting and refinement
A framework is made up of a set of concepts and the relationships between the concepts to facilitate the development of propositions. The purpose of a framework is to provide a frame of reference, organise and focus thinking and assist interpretation. Frameworks are descriptive, tend to be high-level and can apply to a wide variety of situations [48, 49]. An initial framework drafted to demonstrate potential consumer involvement in the six potential settings for disinvestment in a local healthcare setting was presented and discussed in the Community Advisory Committee workshop.
A model is more precise and more prescriptive than a framework. It is narrower in scope, the concepts are well defined and the relationships between them are specific. Models are representations of the real thing [48, 49]. The draft framework was revised based on the outcomes of the workshop and expanded to incorporate the additional elements from the other two frameworks (Figs. 3 and 4), concepts arising from the literature, and interview and workshop data. The level of detail describing and prescribing activities, methods and sources of information make this version a model.
Analysis and synthesis
The robustness and usefulness of the proposed model were analysed and synthesised using the domains and criteria outlined for this purpose by Rycroft-Malone and Bucknall . The resulting summary enables potential users to identify models that meet their needs.
Results and discussion
How can consumer and community values and preferences be integrated into organisation-wide decision-making for resource allocation?
The literature review identified systematic reviews, frameworks, toolkits and guidance for consumer engagement [34, 50–59]. Of particular relevance to this project were documents developed for the Australian healthcare setting [51–53] and others focused on decisions about use of health technologies [57, 58].
Forty-seven staff members participated in the interviews and workshops. The responses provided details of current practice and the views of Monash Health consumers and staff concerning potential systems and processes.
Several key messages regarding an organisational approach to consumer engagement emerged from the literature. The same themes were also evident in the local responses. These messages are also consistent with more recently synthesised evidence and guidance for consumer engagement [27, 31, 33, 60–68].
The findings are discussed in the context of the proposed model for integrating consumer values and preferences into organisation-wide decision-making for resource allocation (Fig. 5).
The list of principles noted below emerged strongly from both the literature and the local interviews and workshop.
There is a plethora of evidence-based handbooks, guidelines and toolkits to assist those seeking to establish a consumer engagement program. Examples are available for international [66, 67], national , regional , and local levels  as well as discipline/condition-specific publications .
Evidence suggests that multiple methods should be employed [25, 55, 61, 64] but it is not known which individual strategies are effective [33, 34, 50, 57, 60, 64, 65]. Selecting methods to suit the type of decision being made, the context it is being made in and the people it will affect was proposed.
Activities for consumer engagement need clear and specific aims, objectives and outcomes [50, 54–56]; processes should be evaluated and the outcomes used for continuous improvement [33, 50, 55, 57, 58].
Consumers need to be well-informed for effective engagement [51–53, 55]. It was proposed that they are provided with as much technical and topic-specific information as possible. Consumers should also be informed in advance about how their contributions will be used and provided with feedback afterwards about the outcomes .
The importance of training and orientation of consumers for effective involvement is inherent in several of these principles.
In the SHARE context, the focus of consumer engagement was in policy and planning, management and service delivery. This is applicable to corporate, clinical and research domains across Monash Health and could be implemented at organisation, program, site, department, unit or ward level.
Disinvestment is undertaken as an independent activity in most examples in the literature. In the SHARE Program, it was thought that disinvestment in isolation from other decision-making processes was artificial and potentially counterproductive and the scope was revised to consider investment and disinvestment within the spectrum of all resource allocation decisions (Fig. 4) . The scope of consumer participation would also reflect this.
Organisational decision-making for resource allocation can be described in three categories: routine, reactive and proactive (Table 2) . Each type of decision provides opportunities for consumer engagement or utilisation of consumer evidence in resource allocation (Fig. 4).
Routine decisions are made on a recurring or scheduled basis and reactive decisions are made in response to situations as they arise. Both would be enhanced by stakeholder’s views. Members of the Consumer Working Group and the Community Advisory Committee agreed that this could be achieved for consumers through engagement of appropriate representatives in the decision-making process or utilisation of published information or locally-collected data.
Proactive decisions arise from information that was specifically ascertained to identify potential for improvement . This information could come from proactive approaches to research, data or stakeholder engagement. Examples provided by respondents are included in Table 3.
The same suite of preconditions for effective consumer engagement was identified from the literature and consumer feedback [31, 50–55]. These include organisational commitment to consumer involvement, willingness to share power in decision-making, establishing a culture of mutual trust and respect, placing value on consumer input, and determining accountability for the consumer engagement process.
In addition to these preconditions, the requirement for adequate and appropriate resources to support consumer engagement emerged as a strong message from authors and respondents [33, 50, 57, 58, 68]. This is not included as a precondition in this model as it is addressed as the third component of the resource allocation process.
The activities to capture and utilise consumer and community values and preferences are presented in relation to the components of the resource allocation process identified in earlier SHARE work (Fig. 2, Table 1). Only seven of the eight components are included as the purpose of the model is to represent the consumer element of stakeholder engagement as it applies to the other seven components.
Consumer and community perspectives can be identified in two ways: consumer engagement through direct involvement of consumers and community groups and use of consumer evidence through application of previously captured information that reflects consumer and community views and perspectives.
Engagement covers a range of activities that connect consumers and community members to the health service; from passive behaviours such as receiving information, through more active participation, to shared decision-making with equal power [31, 33, 61]. There are many ways of summarising or classifying engagement strategies. The more detailed classifications include a wide range of activities from exclusion and tokenism through to citizen control [24, 61, 67, 73]. The classification best suited to the Monash Health aim of integrating meaningful consumer engagement into existing systems and processes is based on three categories: communication, consultation and participation [33, 63, 66].
Communication involves imparting or exchanging information which can be verbal, written or provided by other methods. Examples include advertisements, reports, press releases, websites and social media. There are potential opportunities to communicate with consumers and community members within each component of the resource allocation process to advise them of decisions and outcomes. The appropriateness and need for communication will depend on the context and issues under consideration. The target audience for dissemination of information will also be context-specific; for example earlier work with the Monash Health Technology/Clinical Practice Committee determined that decisions about introduction of new health technologies and clinical practices and subsequent reporting on their performance would be sent in annual reports to the Community Advisory Committee .
The focus in the literature is on methods for health services to communicate with consumers and community members. Monash Health respondents observed that communication can also be initiated by consumers and community members who wish to communicate with the health service. They noted that for this to be successful, mechanisms to receive consumer-initiated contributions and designated staff to accept and act upon them would be required.
Consultation is a process of seeking consumer and community views, preferences, comments and suggestions on specified topics to inform the decision-making process [63, 75]. Examples include public meetings, public opinion polls, public hearings, healthcare forums, consumer reference groups, focus groups, surveys, feedback forms and social media. Like communication, there will be opportunities to seek feedback in all of the components of the resource allocation process, dependent on the nature and scope of the decisions being made.
The Monash Health Community Advisory Committee was available for consultation and a database of individuals who had expressed interest in being consumer representatives was also accessible. The other main approach used at Monash Health was to consult with relevant peak bodies or advocacy groups such as Arthritis Victoria or the Australian Association for the Welfare of Child Health.
Participation is meaningful involvement of consumers in health service decision-making processes . Examples include citizen juries, patient panels, consensus conferences, deliberative polls, citizens' dialogues, committee membership and social media. As for communication and consultation, opportunities for participation can arise in the structure and practice elements of each of the components (Table 1) . Examples of potential activities for consumer participation identified by respondents are included in Fig. 5. The importance of providing sufficient resources for training of consumers and staff in effective integration of consumers in decision-making is highlighted.
Consumers were not generally involved in these activities at Monash Health . Although many staff respondents supported consumer participation in decision-making and were planning to act upon this in the future, others thought that consumer representation on their committees would be inappropriate or that consumers had insufficient technical knowledge to participate . There were some notable exceptions: the Human Research Ethics Committee and the Technology/Clinical Practice Committee both had active consumer participation  and consumers were integrally involved in all projects undertaken by CCE .
Use of consumer evidence
Consumer representatives can present the views of consumers through engagement in a range of settings; however they are not the only source of this information. Respondents pointed out that consumer perspectives can also be found in a range of publications and data sources. Consumer evidence could be relevant in all components of the resource allocation process. Proactive use of consumer evidence to initiate and inform resource allocation processes was not evident in the literature.
Many research articles contain qualitative and quantitative information that captures the views of patients, other health service consumers or study subjects. Consumers and community groups also publish discussion papers and opinion pieces in health journals, newsletters of consumer bodies, consumer magazines and similar publications. Some examples of these are included in Table 4.
Health facilities routinely collect large amounts of data; within which consumer perspectives are found in incident reports, satisfaction surveys, complaints and compliments. Examples of routinely-collected consumer data noted by respondents are included in Table 5.
Monash Health was described as very responsive to incident reports and complaints, reacting quickly and comprehensively, but only on an individual case basis. There were no processes to consider the body of data, seek out patterns or identify areas of concern for further action.
Consumer data is also available from purposefully-collected sources such as surveys, interviews, focus groups and workshops conducted to answer specific questions. This can either be new data collected to address consumer issues under consideration or existing data from previously conducted projects relevant to the current situation. To facilitate use of existing data within the organisation, mechanisms to generate awareness of and enable access to the findings of internal projects would be required. Potential sources of new or existing data identified outside the organisation included self-help groups, peak bodies, health insurance groups, consumer affairs departments and consumer associations. Patient portals and online communities are a combination of in-house and external information where health service consumers can provide information via their own electronic medical record or discussion forums .
Monash Health had no systematic approaches to use of locally-collected consumer information or access of external sources.
Characteristics of the model
The model for consumer engagement is primarily descriptive to enable application in a local healthcare service and allow replication and testing. It was developed using both deductive and inductive methods. Although not based on a specific theory, it has potential to facilitate future theory development and/or testing. Specific characteristics of the model and potential for its use, as discussed in the sections above, are summarised in Table 6 using domains and criteria developed to assess the robustness and utility of proposed models and frameworks . This overview enables potential users to identify whether the model will meet their aims and be applicable to their situation.
As the findings and proposed model are based on the infrastructure, practices and experiences of one organisation, generalisability to other health services may be limited. However most of the local findings are consistent with the literature. Some countries, states/provinces or regions have more centralised decision-making and will require consumer participation at the macro rather than meso level. Differences in organisational culture, values and leadership are also likely to affect generalisability and resource-poor countries may not have the same systems and processes or the capacity or capability to introduce activities in the proposed model.
The proposal to embed consumer participation within organisational decision-making may also be incompatible with the system of independent Citizen Councils already established in many settings.
There are many other aspects of consumer involvement that were not addressed such as values , principles , ladders of participation , depth of participation and degree of control , barriers and enablers to engagement , methods of engagement, and implementation and evaluation of consumer engagement programs . As noted earlier there are also more complex classifications [24, 61, 67, 73]. It has been suggested that “community engagement in public health is more likely to require a ‘fit for purpose’ rather than ‘one size fits all’ approach” . The approach taken for this project and the resulting model focused on potential settings and activities for consumer engagement in all of the components of the resource allocation process. It has been tailored to the needs of a health service which had little formal inclusion of consumers in decision-making processes for resource allocation.
Contribution of this study
This study provides three novel contributions to consumer participation in resource allocation at the local health service level. Firstly, a model is proposed which describes potential underpinning principles, scope, preconditions and activities for successful consumer participation in all components of the resource allocation process at the local health service level. Secondly, the concept of consumer evidence is introduced: sources of consumer views and perspectives found in publications and data sources that can be used systematically and proactively to inform health service decisions. Thirdly, the need for mechanisms within health services to receive and act upon consumer-initiated contributions is identified.
Implications for policy and practice
The framework for resource allocation (Fig. 2) demonstrates that stakeholder engagement should be integrated within the structure and practice of the other seven components. The proposed model (Fig. 5) illustrates how this might be accomplished for consumer engagement in the resource allocation process. It has been noted that this level of “institutionalisation of citizen engagement”, embedding public involvement in decision-making processes with sufficient weight to avoid tokenism and commitment to involvement at an institution-wide level, has rarely been achieved [66, 77]. As an organisation, Monash Health had expressed commitment to consumer engagement, yet it was not widely practiced and many reservations were expressed. Institutions where the culture or leadership do not support consumer engagement are likely to face even greater challenges .
The potential to use social media in consumer engagement was not addressed in this project. This concept was not introduced by the project team or the respondents. There are significant potential opportunities for consumer engagement via social media in health generally , public relations in hospitals [79, 80], participation in health technology assessments , and disinvestment [42, 82].
Consideration of the values and principles underpinning consumer involvement, methods of engagement, and implementation and evaluation of consumer activities will be required when establishing a program incorporating this model.
Implications for research
This model makes a contribution to the lack of frameworks and models noted in the disinvestment literature [3, 4, 7, 9, 10, 38, 42, 83–86]. It presents opportunities and potential activities for consumer engagement in resource allocation decision-making. Future research could include piloting and refinement of the model in this context or extension into other decision-making settings.
“Consumer engagement in Australian health policy is poorly understood, inconsistently practiced, and under theorised” . There is a lack of understanding about how consumer contributions and information flow through the decision-making process and how consumer input contributes to decisions, and a lack of evidence about the effectiveness of different engagement activities [33, 34, 50–60, 64]. The SHARE model provides a structure to focus and facilitate development of hypotheses and testing of interventions in these areas.
Several theoretical approaches have been applied in studies involving consumers or community members in resource allocation decisions; these include decision-making theory , deliberation theory [9, 32, 39], social constructionist theory , resource allocation theory , and prioritisation and quality improvement theories . This model provides opportunities and activities that would enable researchers to investigate the utility and effectiveness of different theories for consumer participation in decision-making.
Although consumer engagement is increasingly becoming a requirement of publicly-funded health services and documented in standards and policies, participation in organisational decision-making is not widespread. The proposed model presents opportunities and potential activities for consumer engagement in the context of resource allocation.
Centre for Clinical Effectiveness
Sustainability in Health care by Allocating Resources Effectively
Technology or clinical practice
Harris C, Green S, Ramsey W, Allen K, King R. Sustainability in Health care by Allocating Resources Effectively (SHARE) 1: Introducing a series of papers reporting an investigation of disinvestment in a local healthcare setting. BMC Health Services Research. 2017 doi:10.1186/s12913-017-2210-7.
Evans BA, Snooks H, Howson H, Davies M. How hard can it be to include research evidence and evaluation in local health policy implementation? Results from a mixed methods study. Implement Sci. 2013;8:17. doi:10.1186/1748-5908-8-17.
Garcia-Armesto S, Campillo-Artero C, Bernal-Delgado E. Disinvestment in the age of cost-cutting sound and fury. Tools for the Spanish National Health System. Health Policy. 2013;110(2-3):180–5. doi:10.1016/j.healthpol.2013.01.007.
Polisena J, Clifford T, Elshaug AG, Mitton C, Russell E, Skidmore B. Case studies that illustrate disinvestment and resource allocation decision-making processes in health care: A systematic review. Int J Technol Assess Health Care. 2013;29(2):174–84. doi:10.1017/s0266462313000068.
Robinson S, Glasby J, Allen K. ‘It ain’t what you do it’s the way that you do it’: lessons for health care from decommissioning of older people’s services. Health Soc Care Community. 2013;21(6):614–22. doi:10.1111/hsc.12046.
Henshall C, Schuller T, Mardhani-Bayne L. Using health technology assessment to support optimal use of technologies in current practice: the challenge of “disinvestment”. Int J Technol Assess Health Care. 2012;28(3):203–10. doi:10.1017/s0266462312000372.
Leggett L, Noseworthy TW, Zarrabi M, Lorenzetti D, Sutherland LR, Clement FM. Health technology reassessment of non-drug technologies: current practices. Int J Technol Assess Health Care. 2012;28(3):220–7. doi:10.1017/S0266462312000438.
Robinson S, Williams I, Dickinson H, Freeman T, Rumbold B. Priority-setting and rationing in healthcare: evidence from the English experience. Soc Sci Med. 2012;75(12):2386–93. doi:10.1016/j.socscimed.2012.09.014.
Watt AM, Hiller JE, Braunack-Mayer AJ, Moss JR, Buchan H, Wale J, et al. The ASTUTE Health study protocol: deliberative stakeholder engagements to inform implementation approaches to healthcare disinvestment. Implement Sci. 2012;7:101. doi:10.1186/1748-5908-7-101.
Gerdvilaite J, Nachtnebel A. Disinvestment: overview of disinvestment experiences and challenges in selected countries. HTA- Projektbericht., vol Nr. 57. Vienna: Ludwig Boltzmann Institut für Health Technology Assessment; 2011.
Riley BL, Robinson KL, Gamble J, Finegood DT, Sheppard D, Penney TL, et al. Knowledge to action for solving complex problems: insights from a review of nine international cases. Health Promot Chronic Dis Prev Canada. 2015;35(3):47–53.
Harris C, Allen K, King R, Ramsey W, Kelly C, Thiagarajan M. Sustainability in Health care by Allocating Resources Effectively (SHARE) 2: Identifying opportunities for disinvestment in a local healthcare setting. BMC Health Services Research. 2017 doi:10.1186/s12913-017-2211-6.
Harris C, Allen K, Waller C, Brooke V. Sustainability in Health care by Allocating Resources Effectively (SHARE) 3: Examining how resource allocation decisions are made, implemented and evaluated in a local healthcare setting. BMC Health Services Research. 2017 doi:10.1186/s12913-017-2207-2.
Harris C, Ko H, Waller C, Sloss P, Williams P. Sustainability in Health care by Allocating Resources Effectively (SHARE) 4: Exploring opportunities and methods for consumer engagement in resource allocation in a local healthcare setting BMC Health Services Research. 2017 doi:10.1186/s12913-017-2212-5.
Harris C, Allen K, Waller C, Green S, King R, Ramsey W et al. Sustainability in Health care by Allocating Resources Effectively (SHARE) 5: Developing a model for evidence-driven resource allocation in the local healthcare setting. BMC Health Services Research. 2017 doi:10.1186/s12913-017-2208-1.
Harris C, Allen K, Brooke V, Dyer T, Waller C, King R et al. Sustainability in Health care by Allocating Resources Effectively (SHARE) 6: Investigating methods to identify, prioritise, implement and evaluate disinvestment projects in a local healthcare setting. BMC Health Services Research. 2017; in press.
Harris C, Allen K, Waller C, Dyer T, Brooke V, Garrubba M et al. Sustainability in Health care by Allocating Resources Effectively (SHARE) 7: Supporting staff in evidence-based decision-making, implementation and evaluation in a local healthcare setting. BMC Health Services Research. 2017; in press.
Harris C, Garrubba M, Melder A, Voutier C, Waller C, King R et al. Sustainability in Health care by Allocating Resources Effectively (SHARE) 8: Developing, implementing and evaluating an Evidence Dissemination Service in a local healthcare setting. BMC Health Services Research. 2017; in press.
Harris C, Green S, Ramsey W, Allen K, King R. Sustainability in Health care by Allocating Resources Effectively (SHARE) 9: Conceptualising disinvestment in the local healthcare setting. BMC Health Services Research. 2017; in press.
Harris C, Green S. Sustainability in Health care by Allocating Resources Effectively (SHARE) 10: Operationalising disinvestment in an evidence-based framework for resource allocation. BMC Health Services Research. 2017; in press.
Harris C, Allen K, Waller C, Dyer T, King R, Ramsey W. Sustainability in Health care by Allocating Resources Effectively (SHARE) 11: Reporting outcomes of an evidence-driven approach to disinvestment in a local healthcare setting. BMC Health Services Research. 2017; in press.
World Health Organization. Declaration of Alma-Ata. International Conference on Primary Health Care 1978. Available from: http://www1.umn.edu/humanrts/instree/alma-ata.html. Accessed 17 Apr 2017.
World Health Organisation. Making fair choices on the path to universal health coverage. Final report of the WHO Consultative Group on Equity and Universal Health Coverage. Geneva: WHO; 2014.
Australian Commission on Safety and Quality in Health Care. Safety and Quality Improvement Guide Standard 2: Partnering with Consumers ACSQHC 2012. Available from: http://www.safetyandquality.gov.au/wp-content/uploads/2012/10/Standard2_Oct_2012_WEB.pdf. Accessed 17 Apr 2017.
Oxman AD, Lewin S, Lavis JN, Fretheim A. SUPPORT Tools for evidence-informed health Policymaking (STP) 15: Engaging the public in evidence-informed policymaking. Health Res Policy Syst. 2009;7 Suppl 1:S15. doi:10.1186/1478-4505-7-s1-s15.
Jeyanathan T, Dhalla I, Culyer T, Levinson W, Laupacis A, Martin D, et al. Recommendations for Establishing a Citizens’ Council to Guide Drug Policy in Ontario. Toronto: Institute for Clinical Evaluative Sciences; 2006.
Gagnon MP, Desmartis M, Gagnon J, St-Pierre M, Rhainds M, Coulombe M, et al. Framework for user involvement in health technology assessment at the local level: Views of health managers, user representatives, and clinicians. Int J Technol Assess Health Care. 2015;31(1-2):68–77. doi:10.1017/s0266462315000070.
Department of Health. Doing it with us not for us: Strategic direction 2010–13. Participation in your health service system: Victorian consumers, carers, and community working together with their health services and the Department of Health. Hospital and Health Service Performance Division, Victorian Government 2010. Available from: http://docs.health.vic.gov.au/docs/doc/A6FECA5B2FFB4503CA2578B500229CD0/$FILE/1104007_DIWUNFU_StratDirection_FA3_web.pdf. Accessed 17 Apr 2017.
Durand MA, Carpenter L, Dolan H, Bravo P, Mann M, Bunn F, et al. Do interventions designed to support shared decision-making reduce health inequalities? A systematic review and meta-analysis. PLoS ONE. 2014;9(4):e94670. doi:10.1371/journal.pone.0094670.
Ryan R, Santesso N, Lowe D, Hill S, Grimshaw J, Prictor M, et al. Interventions to improve safe and effective medicines use by consumers: an overview of systematic reviews. Cochrane Database Syst Rev. 2014;4:CD007768. doi:10.1002/14651858.CD007768.pub3.
Sarrami-Foroushani P, Travaglia J, Debono D, Braithwaite J. Key concepts in consumer and community engagement: a scoping meta-review. BMC Health Serv Res. 2014;14:250. doi:10.1186/1472-6963-14-250.
Boivin A, Lehoux P, Lacombe R, Burgers J, Grol R. Involving patients in setting priorities for healthcare improvement: a cluster randomized trial. Implement Sci. 2014;9:24. doi:10.1186/1748-5908-9-24.
O’Mara-Eves A, Brunton G, McDaid D, Oliver S, Kavanagh J, Jamal F, et al. Community engagement to reduce inequalities in health: a systematic review, meta-analysis and economic analysis. Public Health Res. 2013;1(4). doi:10.3310/phr01040.
Nilsen ES, Myrhaug HT, Johansen M, Oliver S, Oxman AD. Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. Cochrane database of systematic reviews (Online). 2006(3):CD004563. doi:10.1002/14651858.CD004563.pub2.
Murray Z. Community representation in hospital decision making: a literature review. Aust Health Rev. 2015. doi:10.1071/ah14016.
National Institute of Health and Clinical Excellence. NICE Citizen's Council. https://www.nice.org.uk/get-involved/citizens-council. Accessed 17 Apr 2017.
Abelson J, Bombard Y, Gauvin FP, Simeonov D, Boesveld S. Assessing the impacts of citizen deliberations on the health technology process. Int J Technol Assess Health Care. 2013;29(03):282–9. doi:10.1017/S0266462313000299.
Paprica PA, Culyer AJ, Elshaug AG, Peffer J, Sandoval GA. From talk to action: Policy stakeholders, appropriateness, and selective disinvestment. Int J Technol Assess Health Care. 2015;31(4):236–40. doi:10.1017/s0266462315000392.
Hodgetts K, Hiller JE, Street JM, Carter D, Braunack-Mayer AJ, Watt AM, et al. Disinvestment policy and the public funding of assisted reproductive technologies: outcomes of deliberative engagements with three key stakeholder groups. BMC Health Serv Res. 2014;14:204. doi:10.1186/1472-6963-14-204.
Carter D, Watt AM, Braunack-Mayer A, Elshaug AG, Moss JR, Hiller JE. Should there be a female age limit on public funding for assisted reproductive technology? J Bioethical Inq. 2013;10(1):79–91. doi:10.1007/s11673-012-9415-6.
Lindstrom H, Waldau S. Ethically acceptable prioritisation of childless couples and treatment rationing: "accountability for reasonableness". Eur J Obstet Gynecol Reprod Biol. 2008;139(2):176–86. doi:10.1016/j.ejogrb.2008.02.018.
Healthcare Improvement Scotland. What approaches have been taken and efforts made to ensure public involvement in decision making relating to potential disinvestment in healthcare interventions and technologies? In: Public involvement in decision making relating to potential: Technologies scoping report 16. 2013. Available from: http://www.healthcareimprovementscotland.org/our_work/technologies_and_medicines/shtg_scoping_reports/technologies_scoping_report_16.aspx?. Accessed 17 Apr 2017.
Daniels T, Williams I, Robinson S, Spence K. Tackling disinvestment in health care services. The views of resource allocators in the English NHS. J Health Organ Manag. 2013;27(6):762–80.
Mayer J, Nachtnebel A. Disinvesting from ineffective technologies: Lessons learned from current programs. Int J Technol Assess Health Care. 2015:1-8. doi:10.1017/s0266462315000641.
Harris C, Turner T, Wilkinson F. SEAchange. Guide to a pragmatic evidence-based approach to Sustainable, Effective and Appropriate change in health services. 2015. Available from: http://arrow.monash.edu.au/hdl/1959.1/1225377. Accessed 17 Apr 2017.
Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–88. doi:10.1177/1049732305276687.
Srivastava A, Thomson SB. Framework analysis: a qualitative methodology for applied policy research. JOAAG. 2009;4(4):72–9.
Rycroft-Malone J, Bucknall TK. Models and frameworks for implementing evidence-based practice: linking evidence to action. Evidence-based nursing. Chichester: UK Wiley-Blackwell; 2010.
Ilott I, Gerrish K, Laker S, Bray K. Naming and framing the problem: using theories, models and conceptual frameworks. Bridging the gap between knowledge and practice. Your starter for 10: No.2. Sheffield Teaching Hospital NHS Foundation Trust, National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care for South Yorkshire. 2013.
National Institute of Health and Clinical Excellence. NICE Public Health Guidance 9: Community engagement to improve health. 2008. Available from: https://www.nice.org.uk/guidance/ph9. Accessed 17 Apr 2017.
Gregory J. A framework of consumer engagement in Australian health policy: Developing a framework for the AIHPS study. Melbourne, Australia: Australian Institute of Health Policy Studies; 2006.
Gregory J. Conceptualising consumer engagement: A review of the literature. Melbourne, Australia: Australian Institute of Health Policy Studies; 2007.
Gregory J. Consumer engagement in Australian health policy: Final report of the AIHPS research project. Melbourne, Australia: Australian Institute of Health Policy Studies; 2008.
Health Products and Food Branch Health Canada. Public involvement framework. Health Canada 2004. Available from: http://www.hc-sc.gc.ca/ahc-asc/pubs/cons-pub/piframework-cadrepp-eng.php. Accessed 17 Apr 2017.
Health Canada. The Health Canada Policy Toolkit for Public Involvement in Decision Making. Health Canada 2000. Available from: http://www.hc-sc.gc.ca/ahc-asc/pubs/_public-consult/2000decision/index-eng.php. Accessed 17 Apr 2017.
Zena Simces and Associates. Exploring the link between public involvement/citizen engagement and quality health care. Health Canada 2003. Available from: http://www.hc-sc.gc.ca/hcs-sss/pubs/qual/2003-qual-simces/index-eng.php. Accessed 17 Apr 2017.
Chisholm A, Briggs K, Not AJ, NICE. Can PCTs engage patients and the public in commissioning new health technologies? Oxford: Picker Institute Europe; 2009.
Picker Institute. Patient and public engagement – the early impact of World Class Commissioning. A Survey of Primary Care Trusts Oxford: Picker Institute Europe, 2009
Crawford MJ, Rutter D, Manley C, Weaver T, Bhui K, Fulop N, et al. Systematic review of involving patients in the planning and development of health care. BMJ. 2002;325(7375):1263.
Marston C, Renedo A, McGowan CR, Portela A. Effects of community participation on improving uptake of skilled care for maternal and newborn health: a systematic review. PLoS ONE. 2013;8(2):e55012. doi:10.1371/journal.pone.0055012.
Cancer Australia and Cancer Voices Australia. National Framework for Consumer Involvement in Cancer Control. Cancer Australia, 2011. Available from: http://canceraustralia.gov.au/sites/default/files/publications/national_consumer_framework_web_504af020f2184.pdf. Accessed 17 Apr 2017.
Kenny A, Hyett N, Sawtell J, Dickson-Swift V, Farmer J, O'Meara P. Community participation in rural health: a scoping review. BMC Health Serv Res. 2013;13:64. doi:10.1186/1472-6963-13-64.
Paediatric Integrated Cancer Service in collaboration with the Australian and New Zealand Children’s Haematology Oncology Group. A Toolkit for Consumer Participation and Engagement. 2013. Available from: https://pics.org.au/wpcontent/uploads/2016/09/Toolkit_CPE_Final_CompleteDocument_24052013.pdf. Accessed 17 Apr 2017.
Christiaens W, Kohn L, Léonard C, Denis A, Daue F, Cleemput I. Models for citizen and patient involvement in health care policy part I: exploration of their feasibility and acceptability. Part I: Exploration of their feasibility and acceptability. Brussels: Belgian Health Care Knowledge Centre (KCE); 2012.
Tempfer CB, Nowak P. Consumer participation and organizational development in health care: a systematic review. Wien Klin Wochenschr. 2011;123(13-14):408–14. doi:10.1007/s00508-011-0008-x.
National Collaborating Centre for Methods and Tools. Engaging citizens for decision making. McMaster University, Hamilton. 2011. http://www.nccmt.ca/registry/view/eng/86.html. Accessed 17 Apr 2017.
IAP2. Foundations of Public Participation. International Association for Public Participation. Available from: https://www.iap2.org.au/Tenant/C0000004/00000001/files/IAP2_Foundations_of_Public_Participation.pdf. Accessed 17 Apr 2017.
Gill SD, Gill M. Partnering with consumers: national standards and lessons from other countries. Med J Aust. 2015;203(3):134–6.
Scottish Health Council. The Participation Toolkit. Supporting Patient Focus and Public Involvement in NHS Scotland. 2014. Available from: http://shsc.nhs.uk/wp-content/uploads/2014/05/ParticipationToolkit.pdf. Accessed 17 Apr 2017.
Health Consumers Queensland. Developing a consumer and community engagement strategy: a toolkit for Hospital and Health Services. Queensland Health 2012. Available from: http://www.healthissuescentre.org.au/images/uploads/resources/Developing-CCE-strategy-tool-hospitalhealth-services-Qld-health.pdf. Accessed 17 Apr 2017.
Austin Health. Engaging with our Consumers. Austin Health 2013. Available from: http://www.austin.org.au/Assets/Files/CE%20Plan%20FINAL.pdf. Accessed 17 Apr 2017.
CanNET Victoria. Consumer Participation Toolkit. Victorian Integrated Cancer Services Consumer Participation Network 2012. Available from: https://www2.health.vic.gov.au/about/health-strategies/cancer-care/consumer-participation. Accessed 17 Apr 2017.
Arnstein S. A ladder of citizen participation. J Am Inst Plann. 1969;35(a):216–24.
Harris C, Garrubba M, Allen K, King R, Kelly C, Thiagarajan M, et al. Development, implementation and evaluation of an evidence-based program for introduction of new health technologies and clinical practices in a local healthcare setting. BMC Health Serv Res. 2015;15(1):575. doi:10.1186/s12913-015-1178-4.
Consumers’ Health Forum of Australia and National Health and Medical Research Council. A Model Framework for Consumer and Community Participation in Health and Medical Research. NHMRC, Australian Government 2004. Available from: https://www.nhmrc.gov.au/_files_nhmrc/file/publications/r33.pdf. Accessed 17 Apr 2017.
Okun S, McGraw D, Stang P, Larson E, Goldmann D, Kupersmith J, Filart R, Robertson RM, Grossmann C, Murray MD. Making the case for continuous learning from routinely collected data. Washington, DC: Institute of Medicine; 2013.
Sheedy A, MacKinnon M, Pitre S, Watling J. Handbook on citizen engagement: beyond consultation: Canadian policy research networks. 2008.
Grajales 3rd FJ, Sheps S, Ho K, Novak-Lauscher H, Eysenbach G. Social media: a review and tutorial of applications in medicine and health care. J Med Internet Res. 2014;16(2), e13. doi:10.2196/jmir.2912.
Griffis HM, Kilaru AS, Werner RM, Asch DA, Hershey JC, Hill S, et al. Use of social media across US hospitals: descriptive analysis of adoption and utilization. J Med Internet Res. 2014;16(11):e264. doi:10.2196/jmir.3758.
Richter JP, Muhlestein DB, Wilks CE. Social media: how hospitals use it, and opportunities for future use. J Healthc Manag. 2014;59(6):447–60.
Whitty JA. An international survey of the public engagement practices of health technology assessment organizations. Value Health. 2013;16(1):155–63. doi:10.1016/j.jval.2012.09.011.
Street JM, Hennessy SE, Watt AM, Hiller JE, Elshaug AG. News and social media: windows into community perspectives on disinvestment. Int J Technol Assess Health Care. 2011;27(4):376–83. doi:10.1017/s026646231100033x.
Leggett L, MacKean G, Noseworthy T, Sutherland L, Clement F. Current status of health technology reassessment of non-drug technologies: survey and key informant interviews. Health Research Policy and Systems 2012. doi:10.1186/1478-4505-10-38.
Centre for Health Economics Research and Evaluation. Reducing the use of ineffective health care interventions. Working Paper 2010/5. Sydney: University of Technology Sydney; 2010.
Hughes D, Ferner R. New drugs for old: disinvestment and NICE. BMJ. 2010;340. doi:10.1136/bmj.c572
Department of Human Services. Future directions for health technology uptake, diffusion and disinvestment in Victorian public health services. Victoria, Australia: Department of Human Services; 2007.
Schmidt DE. The development of a disinvestment framework to guide resource allocation decisions in health service delivery organizations. The University of British Columbia 2010. Available from: https://open.library.ubc.ca/cIRcle/collections/ubctheses/24/items/1.0073252. Accessed 17 Apr 2017.
National Health and Medical Research Council. Ethical considerations in quality assurance and evaluation activities. Canberra: Commonwealth of Australia; 2014.
The authors would like to acknowledge the contribution of others. Beverley Castleman for her early contributions as consumer representative on the Technology/Clinical Practice Committee and SHARE Steering Committee and later contributions in the Consumer Working Group. Members of the SHARE Steering Committee for direction and guidance. CCE staff members who provided help and support, in particular Marie Garrubba for review of the manuscript and critical comments. Monash Health staff and members of the Community Advisory Committee who gave their time generously to share their thoughts and experiences. Professor Sally Green, Professorial Fellow, School of Public Health and Preventive Medicine, Monash University for review of the manuscript. Professor Green and Associate Professor Richard King for co-supervision of CH’s PhD.
The SHARE Program was funded by Monash Health and the Victorian Department of Human Services. No conditions related to the project or subsequent publications were imposed.
Availability of data and materials
Many of the datasets supporting the conclusions of the articles in the SHARE series are included within the articles and/or the accompanying additional files. Some datasets provide information for more than one article and are only provided once; where they are not included within an article and/or the accompanying additional file, the relevant citations to the articles in which they are provided are included. Datasets have not been made available where it is impossible to de-identify individuals due to the nature of survey or interview responses or where the data is published in confidential internal reports.
CH, HK and CW contributed to design and implementation of the study. PS and PW provided advice and direction. CH drafted the initial manuscript, the other authors provided feedback. All authors read and approved the final manuscript.
CH was the Director of the Centre for Clinical Effectiveness and the SHARE Program Director. CH completed the SHARE publications as part of an unfunded PhD. HK was a Senior Project Officer at CCE. CW was SHARE Project Officer. PS and PW were members of the SHARE Consumer Working Group. PS was a member of the Community Advisory Committee and Consumer Representative on the Technology/Clinical Practice Committee and SHARE Steering Committee. PW was a previous Chair of the Community Advisory Committee and Consumer Representative on the Policy and Procedure Framework Steering Committee.
The authors declare that they have no competing interests.
Consent for publication
Ethics approval and consent to participate
The Monash Health Human Research and Ethics Committee (HREC) approved the SHARE program as a Quality Assurance activity. Further ethical review was not required as the program met the following criteria :
▪ “The data being collected and analysed is coincidental to standard operating procedures with standard equipment and/or protocols;
▪ The data is being collected and analysed expressly for the purpose of maintaining standards or identifying areas for improvement in the environment from which the data was obtained;
▪ The data being collected and analysed is not linked to individuals; and
▪ None of the triggers for consideration of ethical review are present.” 
Participation was based on the ‘opt-out approach’ . “The opt-out approach is a method used in the recruitment of participants into an activity where information is provided to the potential participant regarding the activity and their involvement and where their participation is presumed unless they take action to decline to participate.” Consent to participate was approved by the HREC based on the following criteria:
▪ Health care providers, managers, consumer representatives, and officers within government health departments will be informed about the project and the processes and invited to participate.
▪ Participation in interviews, workshops and/or surveys will be considered to be implied consent.
These conditions were met.
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Methods. (PDF 425 kb)