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Table 2 Item descriptives

From: Parent experiences of diabetes care questionnaire (PEQ-DC): reliability and validity following a national survey in Norway

  n Missing (%) Not applicable (%) Meana Ceiling (%)
1 Are you welcomed in a satisfactorily manner when you arrive at the paediatric department? 1392 0.5 4.40 48.1
2 Do you think you spend a lot of time waiting at the paediatric department? 1393 0.4 3.91 19.5
3 Do you find the waiting room satisfactory? 1389 0.7 3.67 13.5
4 Do you think the paediatric department is well organised? 1318 0.5 5.3 4.00 22.4
5 Do you think the doctors and nurses cooperate well with each other? 1360 0.1 2.7 4.25 39.9
6 Do you think the person providing the consultation is well prepared? 1391 0.1 0.5 4.18 38.5
7 Do you and your child meet the same nurses every time you visit the paediatric department? 1392 0.1 0.4 4.38 53.5
8 Do you and your child have sufficient time for contact with the nurses? 1379 0.5 0.9 4.28 43.0
9 Do you think the nurses are knowledgeable about diabetes and diabetes care? 1340 3.7 0.5 4.52 59.6
10 Do you think the nurses are concerned about and care for your child? 1339 3.8 0.5 4.50 58.5
11 Do you and your child meet the same doctor every time you visit the paediatric department? 1324 3.6 1.7 4.36 57.5
12 Do you and your child have sufficient time for contact with the doctor? 1329 3.9 1.1 4.22 43.0
13 Do you think the doctor is knowledgeable about diabetes and diabetes care? 1322 4.0 1.5 4.57 65.3
14 Do you think the doctor is concerned about and cares for your child? 1326 3.8 1.4 4.38 52.9
15 In your opinion, do the issues addressed in the consultation meet your child’s needs? 1338 3.6 0.8 4.22 40.7
16 Is it clear to you and your child what should be followed up before the next consultation? 1328 3.9 1.1 4.07 37.2
17 Are you and your child involved in deciding what to follow up before the next consultation? 1298 4.0 3.2 3.89 30.4
18 Are your views as a parent taken seriously? 1339 3.8 0.5 4.26 43.3
19 Do you have enough time for conversations without your child being present? 1048 3.8 21.3 2.74 12.0
20 Are you given satisfactory information and guidance on how to follow up on your child’s diabetes treatment? 1335 3.7 0.9 4.05 34.1
21 Do you receive the support you need to transfer more of the responsibility for diabetes treatment to your child? 1191 3.8 11.1 3.85 29.4
22 Do you receive satisfactory information on the results of tests and examinations? 1349 3.6 3.91 27.8
23 Do you receive satisfactory information on the development in your child’s health and the risk of complications? 1320 3.8 1.9 3.66 23.0
24 Do you receive satisfactory information from the paediatric department on what equipment is available? 1338 3.7 0.6 3.31 13.1
25 Do you and your child receive good training in managing the equipment? 1319 3.4 2.3 4.00 31.3
26 In your opinion, does your child have satisfactory access to the best possible equipment? 1294 3.5 4.0 3.53 21.0
27 Does your child have satisfactory access to a dietitian? 1095 3.5 18.2 2.81 10.3
28 Does your child have satisfactory access to a psychologist? 812 3.6 38.3 2.14 6.4
29 Is it easy to make contact with the paediatric department outside of appointments? 1271 0.9 8.3 3.67 24.2
30 What do you think about the number of consultations at the paediatric department? b 1372 0.9 1.1 1.90  
31 Do you think that your child benefits from visiting the paediatric department? 1381 0.3 1.0 3.92 31.9
32 Do you, as a parent, benefit from visiting the paediatric department? 1383 0.6 0.6 4.12 39.5
33 Does the follow up at the paediatric department make you and your child more capable of having a good life with diabetes? 1383 0.5 0.6 4.06 35.9
34 All in all, how dissatisfied or satisfied are you with the way in which the paediatric department has followed up your child and the diabetes treatment? c 1391 0.6 4.35 53.5
35 All in all, how dissatisfied or satisfied are you with the way in which the paediatric department has attended to you as a guardian? c 1391 0.6 4.39 54.3
  1. aAll items were scored on a 5-point response scale ranging from 1 (“not at all”) to 5 (“to a very large degree”)
  2. bItem with 3-point response scale ranging from 1 to 3 (1 = “too few”, 2 = “appropriate”, 3 = “too many”)
  3. cItems with 5-point response scale ranging from 1 (“very dissatisfied”) to 5 (“very satisfied”)